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Rett syndrome: One mom shares her moving story

04:17

Rett syndrome is a rare brain disorder that mostly affects young girls: First they develop normally, but then they suffer a devastating regression of skills. As TODAY marks Rett Syndrome Awareness Month, NBC’s Janet Shamlian profiles Stephanie Bohn, a motivated mom who is launching a campaign to find a cure – and doctors say there is a big chance of such a cure being found.