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Life after eating disorders

In her new book, "Gaining: The Truth About Life After Eating Disorders," author Aimee Liu chronicles her own struggle with anorexia, and also tells the stories of  40  interview subjects with eating disorders.
/ Source: TODAY

Does anyone really understand why eating disorders occur or what it takes to recover? Author Aimee Liu believed she had conquered anorexia in her 20s. Then, in her 40s, she stopped eating again. In her new book, "Gaining: The Truth About Life After Eating Disorders,” Liu chronicles her own struggles, and also tells the stories of 40 interview subjects with eating disorders. She also explores cutting edge treatments. Liu was invited on TODAY to discuss her latest book.

Here is an excerpt:

CONNECTING THE DOTS

When I write of hunger, I am really writing about love and the hunger for it, and warmth and the love of it and the hunger for it . . . and then the warmth and richness and fine reality of hunger satisfied . . . and it is all one.

-M. F. K. Fisher

MY FRIEND CAROL CALLING FROM SANTA FE, sounded elated as she told me her news: after thirty years, she'd finally located our high school classmate Candy Lunt. The last time either of us had seen Candy was at graduation, when she weighed less than 80 pounds. Shortly thereafter, her family left Gree

nwich. The possible implications of her continuing absence from our alumni directory had haunted both Carol and me.

"You should be a bounty hunter!" I said. "Where is she?"

"I spotted her name on the masthead of Forbes.”

"No!"

I called her. Aimee, she still talks in that half whisper from the back of her throat,

low and deep - you remember’

Barely. What I remembered more, at least at the end, was her silence.

"She's an editor," Carol raced on. "She lives in Manhattan with her daughter. Somehow, she's okay"

I wondered. As I'd recently discovered, there was a big difference between survival and well-being.

"Was she glad to hear from you?"

"She and Ruby are coming to the ranch for a visit next week."

Can you come, too?"

"You couldn't stop me," I said.

Such invitations were characteristic of Carol. She had been diagnosed with non-Hodgkin’s lymphoma fourteen years earlier, at thirty-four, and during her first remission she'd launched a personal campaign to track down as many as possible of her "disappeareds" - friends she'd lost through the passage of time. I'd been back in Carol’s orbit for twelve years now, and between her life with cancer and my marital separation four months earlier, we were closer than we'd ever been in school. But I was surprised by Candy's quick response after all these years.

"By the way," Carol said before hanging up, "she calls herself Candace now."

So, I thought as I packed for the trip from Los Angeles, Candy’s taken a grown-up name. I found this disorienting. I didn't know Candace Lunt, whereas I’d first met Candy in third grade, when we were nine years old. We joined the Beach Boys fan club together. At my house in those pre-anorexic days, we baked coffee cake. At hers we ate hot dogs. I remember even as a child finding her ranch-style tract house forbidding. My childhood home was like a museum, filled with Chinese heirlooms - my father’s ancestry - and temple rubbings, carved icons, and brass work acquired during my family's two years in India. While these treasures reflected my parents’ pride of possession, dust did tend to accumulate. The Lunts, too, had lived abroad - in Mexico - but in their house you could see the vacuum tracks in the white carpets, hear the click of the wall clock bounce off the spotless kitchen Formica. Candy's mother and mine both worked, which in suburban Connecticut in the sixties was unusual. Mine imported hand-loomed textiles from India. Hers, a trim, prematurely white-haired woman whom I never once saw smile, was a dental hygienist. My father commuted Manhattan to run the guided tour service at the

United Nations, while Mr. Lunt was a senior vice president with Ford Motors. Candy had two older brothers to my one. And she was smaller, freckled, quiet. Even before she had braces, she always covered her mouth when she laughed.

By senior year Candy was one of the most withdrawn girls in our school. That was 1970. More than three hundred thousand American kids were fighting in Vietnam, and that spring the National Guard opened fire on antiwar students at Kent. While Kate Millett had just published Sexual Politics, most of the girls in our class still wore miniskirts and painted their lips with Yardley Slickers. Candy, however, shunned makeup. She used her long ginger-colored hair as a screen. She avoided both our school’s peace protests and the senior prom.

I arrived a day ahead of Candace at the restored adobe farmhouse Carol shared with her husband, Wayne. Carol and I had known each other since sophomore year in high school when I was just starting my modeling career. Carol back then lived in peasant blouses, blue jeans, and clogs. She always seemed to be baking a carrot cake or making joyous, boldly hued silk screens styled after the artist Sister Corita. She also knew how to fly a Cessna and shoot her dad's Smith & Wesson. Naturally slender and small-boned, Carol had never so much as flirted with anorexia nervosa, but she held a unique attraction for those of us who did. This was partly because she never seemed to judge us, but mostly because we wished we could be like her. Now, at forty-seven she was an accomplished graphic designer, painter, and horsewoman. She lived in cowboy boots and kept paints and pastels in her kitchen next to the sugar and olive oil. She was still my favorite role model.

We brought each other up-to-date on the respective states of my marriage and Carol's illness, both in flux with uncertain outcomes. Then Carol said, "Candace's divorce was just finalized."

The two of us, she intimated, should find plenty to talk about. And since Carol was weakened from her latest round of chemo, I would be making the hour drive to pick up Candace and her daughter at the Albuquerque airport.

As I hovered by the security checkpoint I wondered what I was looking for. I’d gained more than thirty pounds since high school, and current friends seeing my old modeling pictures would bluntly ask, "That's you’" Surely Candy would be equally transformed. But my thoughts kept sliding back to my last images of her. Seventeen years old, she sat alone in the corner of the cafeteria making a half hour meal out of a six-ounce container of plain yogurt. Though in many ways her mirror image, I rarely spoke to her. By then, we pitied each other. We also admired each other. We knew each other’s secrets without knowing the details, and so, on a subliminal level, we feared each other.

"Aimee’" The voice came softly from my right. I turned and immediately recognized my friend from third grade. She still wore her hair long and straight, no makeup to hide her freckles; and her eyes were that same cerulean blue: quiet, steady, yet voracious.

When we hugged, her grip felt healthy, her body trim but solid. She smelled like Breck shampoo. So did her daughter, Ruby - a wary, dark-eyed child still sleepy from her nap on the plane. Ruby was the same age Candy and I had been when we first met.

On the drive to Santa Fe, Candace told me she and Ruby had moved to lower Manhattan three years earlier from San Francisco and were only now settling in. She glanced toward the backseat. Ruby, she said, was one of those kids who have just three friends and know everything about them from how they arranged their socks to what they muttered in their sleep. It hadn't been any easier for Ruby to find such friends in New York than it had been for her to deal with her parents’ divorce.

"How long were you married’"

"Fifteen years." Her ex-husband, Candace explained, was her opposite: he’d voted for Bush, attended church, had workingclass parents who drank, and was happy to cruise for a year between jobs - largely because Candace covered the bills. Before disappearing, he’d cleaned out her bank account. Candace had nearly lost her own job while fighting her husband in court - to little avail. She’d also lost twenty pounds - the first relapse into anorexia since college."

"The divorce diet," I said, not joking.

She nodded. Five years later, she’d regained the weight but was still struggling to sort out what had gone wrong in the marriage.

"I tried to tell him, 'I'm like a plant and you’re overwatering me,’" she said. "But he was too needy, and when he couldn’t have all my attention, he turned vengeful."

It seemed to me she was giving her ex more credit than he deserved, but I knew from my own experience there had to be more to the story. "It falls into the category of ‘be careful what you wish for,’"  I said when Candace asked about my separation. Superficially, my marriage had all the right ingredients. My husband was generous, smart, devoted to our sons, and more attractive to me with his silver hair at sixty than any man I’d dated in my twenties. Maybe the problem was the fourteen-year age gap. Maybe it was his latest business deal, which had turned him into a workaholic. Of course I’d never cared about the Lakers, and he couldn't stand to socialize, especially with my friends. Worse, we'd do anything to avoid honest confrontation . . . But all these were evasions. "I'm still sorting out my role in all this," I admitted. "But I guess the important realization is that I played one."

"You're ahead of the game," Candace said. "I didn't realize that until it was too late."

When we reached the ranch, the afternoon turned into a blur of activity as Carol showed off her painting and photography studios, and we played with the horses and dogs. We didn't settle down until evening, when Carol brought out a set of easy bake mugs for us to paint at the large wooden table in the middle of her kitchen. As everyone got to work I felt like I'd landed back in art class in elementary school - the more so when I glanced up and saw Candace covering her mouth with her hand as she smiled at something Ruby had said. Carol drew hearts and horses, a miniature of the view from her window, with printed words of love. Ruby made free-form swirls, letting herself go. Candace created a meticulous, pointillist ocean of fishes. I stared at the surface of my cup.

I applied the marker. I erased the mark. A picture was supposed to present itself, but my mind was as blank as the clay. I stole another look at Candace’s impeccable sea as Carol's husband, Wayne, strolled through the kitchen. He took one look at me and

in his amused, laid-back way said, "Aimee. It's only a mug."

Candace threw me a look of sympathy. Carol frowned at Candace's mug. All those compulsively ordered dots. "This is supposed to be fun," Carol said.

Ruby grinned and held up her abstraction. "I'm having fun!"

We laughed, and I loosened up enough to deface my mug with a maze of inked leaves, but it wasn’t fun for me.

When we talked about it later, Candace told me she often drew in points, trying to make pictures out of the negative space. "I guess it goes back to my failed attempts at therapy," she said. "They never connected the dots." "What do you mean by dots’" "You know. Weight and men, my body, my family." She described her longing to let loose. She felt she needed to make some enormous, meaningful gesture through her work or music.

"But it's as if this impulse is gridlocked by the compulsion to always behave."  I felt this gridlock, too. In my bones. In that silly mug drawing.

In my lifelong habit of biting my nails. I glanced across the table. Yes, Candace also chewed her nails, although, tellingly, she had succeeded in restricting herself to her left ring finger.

Was anorexia nervosa merely another symptom of this internal constraint’ The more Candace and I talked, the more we did seem to have in common. Our similarities went way beyond where and when we were raised: we both dreaded making a mistake; both hated being the center of attention, even though we craved praise and needed to excel; we didn’t laugh easily or openly or trust ourselves to relax. I imagined the two of us standing side by side, question marks tattooed on our foreheads.

That night I said to Candace, "If we went back and talked with the other women we knew who had eating disorders in high school and college, I think we'd find we all have more in common - even today - than we have with the rest of our classmates."

But Candace was not so sure. "Don't you think people change’"

"I think they can when they know what needs changing.

Gaining weight was only a first step - for me, at least." ....

Copyright © 2007 by Aimee E. Liu

The foregoing is excerpted from "Gaining: The Truth About Life After Eating Disorders," by Aimee E. Liu. All rights reserved. No part of this book may be used or reproduced without written permission from , 1271 Avenue of the Americas, New York, NY 10020.