TODAY   |  May 13, 2013

Medical disorder leaves woman lost in own home

Sharon Roseman is speaking out about developmental topographical disorientation, which causes her to get lost in even the most familiar surroundings. At least 1,000 people have been diagnosed with the disorder, first identified in 2008. NBC’s Kristen Dahlgren reports.

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>>> ever gotten lost somewhere you should know? it happens to one woman every day and as nbc's kristen dahlgren explains, it's tied to a medical problem that may affect more people than we realize.

>> reporter: we've all had that feeling, lost, turned around, panicked.

>> circles are bad for me and so are angles.

>> reporter: for sharon roseman that's every day.

>> i can literally see my house out the car window, but i have no clue that it's my house.

>> reporter: even in her own home nothing looks familiar because she has developmental topographical disorientation or dtd. dtd was first discovered in 2008 but roseman has had it her whole life. she remembers being 5 and asking her mom where they were.

>> i said, this doesn't look like our house and that's when she pointed her finger at my face and she said, don't ever tell anybody, because they'll say you're a witch and they'll burn you.

>> reporter: she didn't talk about it again for years, never even told her ex-husband, and when her kids cried in the night --

>> where i thought i was heading to go out the doorway of my bedroom was now a wall, and i would bang right into it.

>> reporter: her brain doesn't have the ability to create an internal map.

>> this refrigerator is over there and the microwave is now over there.

>> reporter: for years no one understood. doctors suggested she had a split personality until dr. jaria discovered it was dtd. about 1,000 others have been diagnosed so far. roseman hopes someday there's a cure or at the very least an understanding.

>> i want someday to have a child in kindergarten or first grade to be able to say to the teacher, this isn't really the room that we always are in, is it? and i want that teacher to know about it.

>> reporter: for "today," kristen dahlgren, nbc news, highlands ranch , colorado. for more on dtd including tests to see if you or your child may have it, head to our website