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Rebecca Alexander on making her life happen, despite rare disease

Rebecca Alexander is slowly losing her sight and her hearing because of a genetic disease called Usher Syndrome. In her new book, “Not Fade Away,” Alexander shares how she makes her own life happen. “I don’t have time to sit around and wait,” she says. TODAY’s Lester Holt sat down with Rebecca and her brother, NBC’s Peter Alexander.

Rebecca Alexander is slowly losing her sight and her hearing because of a genetic disease called Usher Syndrome. In her new book, “Not Fade Away,” Alexander shares how she makes her own life happen. “I don’t have time to sit around and wait,” she says. TODAY’s Lester Holt sat down with Rebecca and her brother, NBC’s Peter Alexander.