Today's Fresh Blogs...

• Raising millions for MS by riding bikes

  Published: September 7, 2007, 2:24 pm

  Tags: Multiple Sclerosis, National Ms Society, Ms 150

  and skill, will ride in The National MS Society's MS Bike Tour, also known as the MS 150. This is a two day- 150 mile bike ride. I've heard from other folks that several other chapters are hosting their MS Bike Tours this month as well. It's one thing to know that all of these people are donating and raising money in search of a cure. It's a

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• Fast Forward to new treatments for MS

  Published: September 21, 2007, 4:04 pm

  Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, National Ms Society, Ms Community

  getting drug treatments for MS through the pipeline and into the approval process at a rate that other business products do to reach the market. The board of trustees of the National MS Society NMSS -has started a subsidiary organization, called Fast Forward, to do just this. When I heard Joyce Nelson, President and CEO of NMSS, speak this

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• A Tysabri rebound

  Published: September 28, 2007, 3:46 pm

  Tags: Tysabri, Multiple Sclerosis, Ms Treatment, Ms Therapy, National Ms Society, Ms Community, Brain Lesions

  evidence. If it seems like a number of us with MS are experiencing something, I think it's worthy of further study. However, I also understand that until that study is performed it may just be some people talking. Well, now that further study is trickling in there does indeed seem to be a problem. In a small study based upon this

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• October check: How is your MS today?

  Published: October 3, 2007, 2:19 pm

  Tags: Tysabri, Multiple Sclerosis, Ms Treatment, Ms Therapy, Humira, Infusions, Ms Hug, Ms Vision, Ms Balance, National Ms Society, Ms Community, Accessibility

  flattery. So, how is your MS today? Mine? Well, at a recent neuro appointment, we're starting to see a slow slide again. It has been two years since my last Novantrone treatment. I, along with my docs, decided to keep one dose in my hip pocket' as it were. And it may be time to use it. The good news is that these past two years have

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• I'm tired of MS and I'm just plain tired

  Published: October 17, 2007, 4:01 pm

  Tags: Tysabri, Multiple Sclerosis, Ms Treatment, Ms Therapy, Humira, Infusions, Ms Hug, Ms Vision, Ms Balance, National Ms Society, Ms Community, Accessibility, Brain Lesions, Ms Research, Stem Cell Research, Ms Your Feelings, Grief, Ms Blog

  and diametric opposition of MS. I'm tired of my friends slipping and sliding down a slope and it being called progression . I'm tired I'm tired of my brain working so hard to find new pathways to get information to my body that I lay awake half the night. I'm tired of taking drugs to help me sleep that do not work and leave me too groggy

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• Good day sunshine and hello vitamin D!

  Published: October 19, 2007, 12:55 pm

  Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, Ms Hug, Ms Balance, National Ms Society, Ms Community, Ms Research, Ms Your Feelings, Ms Blog

  I've been hearing from MS specialists that the vitamin D that we produce in our bodies, synthesized from the sun, is better for us than the pills we ingest - and cheaper. Well, maybe not so cheap if you live in an area of the country, which sees months of gray blankets of clouds for months on end; especially this time of year. Ever since

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• Complaining about MS doesn't mean you lack gratitude

  Published: October 22, 2007, 1:28 pm

  Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, Infusions, Ms Hug, Ms Balance, National Ms Society, Ms Community, Ms Research, Ms Your Feelings, Grief, Ms Blog

  Caryn Our Life with MS blog community which greets my every morning as I check-in Something meaningful to look forward to in the day A medical team upon whom I can (and do) call regularly The National MS Society and its local chapters A hot shower and a warm, dry towel The spirit, instilled by my

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• You may have asked yourself, what is a stem cell?

  Published: October 24, 2007, 2:50 pm

  Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, Ms Balance, National Ms Society, Ms Community, Ms Research, Stem Cell Research, Ms Your Feelings, Ms Blog

  to attend and present at the National MS Society's national conference. I'll be hosting the webcast from a phone in my hotel room; that should be interesting seeing as how my computer skills aren't always the greatest. I encourage all of you to tune in and get some education on stem cells and ask your questions of some serious experts. I hope my

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• Notes from the annual conference of the National MS Society

  Published: October 29, 2007, 2:31 pm

  Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, Ms Balance, National Ms Society, Ms Community, Accessibility, Ms Research, Ms And Your Feelings, Ms Blog, Nmss, Nmss Conference

  the annual conference of the National MS Society. There is something to be said for the way that big ol’ state of Texas throws a party. The event entailed three days of workshops, conferences, town hall meetings and socializing. Quite frankly, my head, heart and belly are chock-full. In the days and weeks ahead, I plan to tease out the

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• MS and Your Feelings: Book club blog chapter 9

  Published: October 31, 2007, 2:20 pm

  Tags: Ms Treatment, Ms Therapy, Ms Balance, National Ms Society, Ms Community, Ms Research, Book Club Blog, Ms And Your Feelings, Allison Shadday, Ms Blog, Ms And Fatigue

  recently published book MS and Your Feelings: Handling the Ups and Downs of Multiple Sclerosis. This month, we're on to chapter 9. I devoured this book when the first of several copies made their way to me. I'll admit that I've been re-scanning the past couple of chapters as I write my monthly blog entry. This chapter, however, I

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• Optical coherence tomography: Replacement for MRI?

  Published: November 2, 2007, 2:47 pm

  Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, Ms Vision, National Ms Society, Ms Research, Ms Blog, Nmss, Nmss Conference, Oct, Optical Coherence Tomography, Mri

  every person living with MS (almost) has some damage to the optic nerve, even though we may not realize it. Even if a patient has never complained of symptoms of optic neurosis, damage is being done to our ability to see; even at the cellular level. Using OCT to scan the back of the eyeball, doctors can see the thickness of the nerve

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• MS and Your Feelings: Book club blog chapter 11

  Published: December 31, 2007, 3:38 pm

  Tags: Allison Shadday, Book Club Blog, Ms And Your Feelings, Ms And Fatigue, Ms And Sex, Ms Balance, Ms Blog, Ms Community, Ms Treatment, Ms Webcast, Multiple Sclerosis, National Ms Society, Holidays

  see people in every stage of MS at first. We can all feel good about the fact that we are at least here at this Life with MS blog for support and camaraderie. The last part of this chapter that we need to discuss is about sex. We've talked about MS and sex (and our reluctance to talk about sex) on this blog as well as in the HealthTalk MS

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• What will 2008 hold for those of us living with MS?

  Published: January 4, 2008, 9:53 am

  Tags: Christmas, Fast Forward, Ms Blog, Ms Community, Ms Treatment, Multiple Sclerosis, National Ms Society, New Year, Presidential Election, Tysabri, Stem Cell Research

  insurance reform? Will the National MS Society's new Fast Forward program bring hopeful, new drugs to clinical trials this year? Will Medicare start to pay for assistive devices we need outside our homes? The new year is also a time to take stock in our personal journey with multiple sclerosis. Exercise, yoga and a healthier diet are in my

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• Multiple sclerosis in the White House?

  Published: January 25, 2008, 5:45 pm

  Tags: Ms Lifestyle, Ms Politics, Ms Community, Ann Romney, Dark Time, First Lady, Mitt Romney, Multiple Sclerosis, National Ms Society, New England Chapter, Politics, President, Presidential Election, Primaries, Stem Cell, Treatment, White House, Wife

  by medical experts and the National MS Society (even though her bio states that she has been an active board member of the Society's New England Chapter) and that she, along with her husband, do not support the federal funding of stem cell research. Mrs. Romney, it must be said, is one of those people who would hear, But you look so good.

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• Multiple sclerosis loves company

  Published: February 4, 2008, 3:08 pm

  Tags: Ms Lifestyle, Ms Politics, Ms Community, National Ms Society, Accessibility, Blog, Cyber, Life With Ms, Mobility, Ms Bills, Ms Blog, Ms Online, Ms Seminar, Multiple Sclerosis, Scooter, Trevis Gleason

  of three chapters of the National MS Society were gathering to strategize. He told me something that made me very happy happy for all of us. His news also concerned me a little bit and I want to address it today. Seems he was at one of those MS seminars recently, you know the ones sponsored by an MS drug company where a doctor speaks of

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