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| Raising millions for MS by riding bikes |
| Published: September 7, 2007, 2:24 pm |
| Tags: Multiple Sclerosis, National Ms Society, Ms 150 |
| one in 500 is diagnosed with multiple sclerosis. That's about twice the national average in the US. I refer to MS as a disease of one degree of separation around here. If everyone knows someone with MS, it's not a far stretch to think that people will make a financial gift that is appropriate for them. When I speak at our major fundraisers, I |
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| A new kind of shot for MS is being researched |
| Published: September 10, 2007, 3:12 pm |
| Tags: Tysabri, Multiple Sclerosis, Ms Treatment, Ms Therapy, Ms Vision |
| work more tactically on multiple sclerosis. This study used a vaccine of BHT-3009, which is a genetic material which instructs cells to produce something called MBP or Myelin Basic Protein (a building block of myelin). This may be why the study seemed to work on both RRMS and SPMS forms of the disease; it's telling the cells to make more of |
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| MS and divorce |
| Published: September 14, 2007, 6:23 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Community |
| lives of people affected by multiple sclerosis and it stinks. This time around, Caryn and I are proactively dealing with the vast unknowns of MS, and the other parts of a relationship. I think that is key; start working on potential issues before they come up. I know that many of you are in relationships which are tenuous; what interpersonal |
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| Multiple Sclerosis patients walk faster thanks to VR technology |
| Published: September 16, 2007, 7:08 am |
| Tags: Multiple Sclerosis, Multiplesclerosis, Virtual Reality, Virtualreality, Walking |
| enable people suffering from Multiple Sclerosis to walk more effectively. The virtual reality tech takes the form of a small screen attached to glasses which projects a moving, virtual ground computed using sensors that measure the user's eye and body movements. This "virtual floor" apparently improves the walking ability of MS sufferers, and |
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| How accessible is your community? |
| Published: September 19, 2007, 4:59 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Community, Accessibility |
| I am traveling this week and writing from a hotel business center thus the reason I am rewriting this blog after writing it early on Monday morning I love technology. I get to spend part of this week in one of my, if not all-time, favorite cities in the U.S., San Francisco. Travel takes a good bit out of every person but it especially does to |
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| Fast Forward to new treatments for MS |
| Published: September 21, 2007, 4:04 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, National Ms Society, Ms Community |
| Every once in a while, a new idea comes along that seems so natural and sensible that we wonder why it took so long. Ideas enter the marketplace and are destined for the loom, if you will, to be woven into the fabric of our everyday lives. Think detergent and fabric softener, scoopable kitty litter, flavored coffee creamer and digital cameras. I |
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| Time for an overhaul? |
| Published: September 27, 2007, 4:33 pm |
| Tags: Tysabri, Multiple Sclerosis, Ms Treatment, Ms Therapy, Humira, Infusions, Ms Community |
| Back in the day, one of my culinary instructors used to flip off the phrase, One day in life, the carriage is going to pass and the dog is going to bark. To my understanding, this is an old saying about the fact that no matter what we do or don't do in our life, we are all destined for the hearse, and we will be leaving something or someone |
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| A Tysabri rebound |
| Published: September 28, 2007, 3:46 pm |
| Tags: Tysabri, Multiple Sclerosis, Ms Treatment, Ms Therapy, National Ms Society, Ms Community, Brain Lesions |
| talk with people living with multiple sclerosis on a regular basis. I hear of people's success and of their challenges. I've also heard a lot from people who were on Tysabri during its original trials and/or right after it was approved. Many of these same people had to stop taking Tysabri when it was taken off the market. Since that time many |
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| October check: How is your MS today? |
| Published: October 3, 2007, 2:19 pm |
| Tags: Tysabri, Multiple Sclerosis, Ms Treatment, Ms Therapy, Humira, Infusions, Ms Hug, Ms Vision, Ms Balance, National Ms Society, Ms Community, Accessibility |
| Days slip away as hours of sunlight diminish here in the north. I know our members down under are seeing warmer days and shrinking nights, but here, closer to the 50th parallel, the leaves, temperatures and rain have begun their long and steady fall. School years are in full swing and so are our social calendars. The rush for year-end deadlines |
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| A civil conversation about stem cell research |
| Published: October 5, 2007, 3:31 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, Ms Community, Ms Research, Stem Cell Research |
| Every time I bring up the topic of stem cell research on this blog, the conversation spirals. I hope in this post that we can have some real and civil questions; not a statement of opinion or ranker, but rather a forum of questions. The HealthTalk webcast this month will be on the topic of stem cell research. We are lining up some great guests |
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| MS nerve damaged repaired in lab |
| Published: October 9, 2007, 11:20 am |
| Tags: Antibody, Damage, Experiments, Immune, Lab, Mayo Clinic, Mice, Multiple Sclerosis, Myelin, Nerve, Neurological, Repaired, Research, Rochester, Scientists, Technology, Treatments |
| "US scientists have repaired the nerve damage caused by multiple sclerosis in lab experiments on mice. read more |
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| Genes that affect responses of multiple sclerosis patients to copaxone |
| Published: October 10, 2007, 3:01 pm |
| Tags: Health, Genes, Multiple Sclerosis, Multiple Sclerosis Treatment |
| A group of Israeli scientists from the Technion Israel Institute of Technology, the Weizmann Institute of Science and Teva Pharmaceutical Industries have recently identified genes responsible for the positive response of many multiple sclerosis patients to the drug Copaxone . |
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| October recipe for success: Just the flax Ma'am |
| Published: October 10, 2007, 5:16 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, Healthy Recipe, Ms Community, Ms Research |
| Each month we open the discussion up to a favorite topic of mine: FOOD! We have a conversation and usually a recipe that is easy, healthful and tasty. This month, instead of a recipe, I'd like to talk about an ingredient: Flax seeds. These little dynamos may have a very healthful effect on the typical body, but they may be even more helpful to |
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| MS and Your Feelings: Book club blog chapter 8 |
| Published: October 12, 2007, 2:42 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, Ms Hug, Ms Vision, Ms Community, Ms Research, Book Club Blog, Ms Your Feelings, Allison Shadday, Grief |
| It's something that we with multiple sclerosis must learn to process over and over in the course of our disease. Just when we think we've gotten over something, something else is taken from us. We grieve a lot with MS. We should be good at it by now but many of us aren't. I found this chapter a good one because it not only speaks of |
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| Multiple sclerosis that runs in families appears more severe than non-familial MS |
| Published: October 12, 2007, 3:37 pm |
| Tags: Health, Magnetic Resonance Images, Multiple Sclerosis, Multiple Sclerosis Treatment |
| Magnetic resonance images (MRI) of a large group of patients with multiple sclerosis has provided the first evidence that those with a history of MS in their families show more severe brain damage than patients who have no close relatives with the disease. |
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