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| A new kind of shot for MS is being researched |
| Published: September 10, 2007, 3:12 pm |
| Tags: Tysabri, Multiple Sclerosis, Ms Treatment, Ms Therapy, Ms Vision |
| followed 30 patients with MS, but I think it is valuable information for a number of reasons. First, I think we will all be happy to note that the study included relapsing-remitting MS (RRMS) patients as well as secondary-progressive (SPMS). I know many have been frustrated over the years that drugs don't seem to be aimed at the progressive |
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| September recipe for success |
| Published: September 12, 2007, 3:19 pm |
| Tags: Ms Treatment, Ms Therapy, Healthy Recipe, Ms Community |
| On the second Wednesday of each month, we've been talking about simple, tasty, healthful cooking. We know that not everyone will like every recipe. We also know that not everyone is in a place where even simple cooking tasks are doable and that's okay. I've been hearing from some of you that, while you don't cook much anymore, that you are cooking |
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| MS and divorce |
| Published: September 14, 2007, 6:23 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Community |
| hits a person living with MS a little bit harder - not that anyone goes unscathed by the emotional impact of a disillusion. (Ha! Who came up with that legal term for divorce? Talk about a truism). According to Rosalyn Kalb, in her book, “MS; A Guide for Families;” the divorce rate may be lower for people with MS because of a couple |
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| How accessible is your community? |
| Published: September 19, 2007, 4:59 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Community, Accessibility |
| does to those of us with MS. Fighting my MS “thing” and this damned hip thing are having me use my cane more than I have in the past months. As I travel with (and without) my stick as assistance, I somehow am made more aware of curb cuts, ramps and the like. I can get around alright without them, but they do help sometimes. It has |
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| Fast Forward to new treatments for MS |
| Published: September 21, 2007, 4:04 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, National Ms Society, Ms Community |
| has to do with getting drug treatments for MS through the pipeline and into the approval process at a rate that other business products do to reach the market. The board of trustees of the National MS Society NMSS -has started a subsidiary organization, called Fast Forward, to do just this. When I heard Joyce Nelson, President and CEO of |
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| The many hands that help |
| Published: September 24, 2007, 3:07 pm |
| Tags: Ms Treatment, Ms Therapy, Ms Balance, Healthy Recipe, Ms Community, Accessibility |
| juice and a stick mess of themselves for a few hours and even cleaned up. It looked to me as if the mill hadn't been used in a couple of decades, but we got it up and running and had a ball! Obviously, I don't need 40 gallons of cider (now gently bubbling away in my cellar, with the help of some champagne yeast). Likely, most of us don't have |
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| Time for an overhaul? |
| Published: September 27, 2007, 4:33 pm |
| Tags: Tysabri, Multiple Sclerosis, Ms Treatment, Ms Therapy, Humira, Infusions, Ms Community |
| be hosting the HealthTalk MS program. This evening's program will be particularly poignant for those of us who have been on a drug treatment plan for several years. Overhaul Your Treatment Plan: Could It Be Working Better for You? will cover the reasons we might consider a new treatment plan. It will encompass new and emerging therapies, |
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| A Tysabri rebound |
| Published: September 28, 2007, 3:46 pm |
| Tags: Tysabri, Multiple Sclerosis, Ms Treatment, Ms Therapy, National Ms Society, Ms Community, Brain Lesions |
| drug choices carefully. The MS drugs are not something we should expect to work overnight; they are long term treatments. As I hear and read more about this topic, I'll share. I hope you will too. In fact, I hope you'll share your experiences if you have stopped Tysabri treatment. I hope you'll share your thoughts on staying on any drug |
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| October check: How is your MS today? |
| Published: October 3, 2007, 2:19 pm |
| Tags: Tysabri, Multiple Sclerosis, Ms Treatment, Ms Therapy, Humira, Infusions, Ms Hug, Ms Vision, Ms Balance, National Ms Society, Ms Community, Accessibility |
| flattery. So, how is your MS today? Mine? Well, at a recent neuro appointment, we're starting to see a slow slide again. It has been two years since my last Novantrone treatment. I, along with my docs, decided to keep one dose in my hip pocket' as it were. And it may be time to use it. The good news is that these past two years have |
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| A civil conversation about stem cell research |
| Published: October 5, 2007, 3:31 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, Ms Community, Ms Research, Stem Cell Research |
| have to be strictly about MS and stem cell research they can be on anything pertaining to stem cell research. It's a subject that may affect many of us in our lifetime. Stem cell research has been white hot at times here on this blog; it's a difficult topic everywhere. I'd like to present a balance of questions to my guests. If you were in |
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| October recipe for success: Just the flax Ma'am |
| Published: October 10, 2007, 5:16 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, Healthy Recipe, Ms Community, Ms Research |
| to those of us who have MS. I say may because as we well know, research takes money and the flax farmers are not wealthy research philanthropists. There is evidence that the essential Omega fatty acids in flax can act to regulate the immune system and act as a natural anti-inflammatory agent. And, they taste much better than the fish oils |
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| MS and Your Feelings: Book club blog chapter 8 |
| Published: October 12, 2007, 2:42 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, Ms Hug, Ms Vision, Ms Community, Ms Research, Book Club Blog, Ms Your Feelings, Allison Shadday, Grief |
| writing the How's your MS blog that I realized that the calendar had moved to October. Couple that with some other technical issues and here we are, Friday of week two rather than Friday of week four. My apologies to all of our readers and to Allison Shadday, our author. This month's chapter deals with grief and grieving. We've had |
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| The low down on MS misinformation |
| Published: October 15, 2007, 6:09 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, Ms Balance, Healthy Recipe, Ms Community, Ms Research, Ms Blog |
| I write our MS because many of these shameless marketers/spammers seem to think I'm some kind of a gatekeeper to the MS community. But you don't have to have a forum like this blog to find yourself in the path of the latest MS pitch. My favorite (lips dripping with sarcasms right now) are ads you'll see on respectable sites. A |
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| I'm tired of MS and I'm just plain tired |
| Published: October 17, 2007, 4:01 pm |
| Tags: Tysabri, Multiple Sclerosis, Ms Treatment, Ms Therapy, Humira, Infusions, Ms Hug, Ms Vision, Ms Balance, National Ms Society, Ms Community, Accessibility, Brain Lesions, Ms Research, Stem Cell Research, Ms Your Feelings, Grief, Ms Blog |
| and diametric opposition of MS. I'm tired of my friends slipping and sliding down a slope and it being called progression . I'm tired I'm tired of my brain working so hard to find new pathways to get information to my body that I lay awake half the night. I'm tired of taking drugs to help me sleep that do not work and leave me too groggy |
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| Good day sunshine and hello vitamin D! |
| Published: October 19, 2007, 12:55 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, Ms Hug, Ms Balance, National Ms Society, Ms Community, Ms Research, Ms Your Feelings, Ms Blog |
| I've been hearing from MS specialists that the vitamin D that we produce in our bodies, synthesized from the sun, is better for us than the pills we ingest - and cheaper. Well, maybe not so cheap if you live in an area of the country, which sees months of gray blankets of clouds for months on end; especially this time of year. Ever since |
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