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| The low down on MS misinformation |
| Published: October 15, 2007, 6:09 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, Ms Balance, Healthy Recipe, Ms Community, Ms Research, Ms Blog |
| I write our MS because many of these shameless marketers/spammers seem to think I'm some kind of a gatekeeper to the MS community. But you don't have to have a forum like this blog to find yourself in the path of the latest MS pitch. My favorite (lips dripping with sarcasms right now) are ads you'll see on respectable sites. A |
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| I'm tired of MS and I'm just plain tired |
| Published: October 17, 2007, 4:01 pm |
| Tags: Tysabri, Multiple Sclerosis, Ms Treatment, Ms Therapy, Humira, Infusions, Ms Hug, Ms Vision, Ms Balance, National Ms Society, Ms Community, Accessibility, Brain Lesions, Ms Research, Stem Cell Research, Ms Your Feelings, Grief, Ms Blog |
| and diametric opposition of MS. I'm tired of my friends slipping and sliding down a slope and it being called progression . I'm tired I'm tired of my brain working so hard to find new pathways to get information to my body that I lay awake half the night. I'm tired of taking drugs to help me sleep that do not work and leave me too groggy |
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| Good day sunshine and hello vitamin D! |
| Published: October 19, 2007, 12:55 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, Ms Hug, Ms Balance, National Ms Society, Ms Community, Ms Research, Ms Your Feelings, Ms Blog |
| I've been hearing from MS specialists that the vitamin D that we produce in our bodies, synthesized from the sun, is better for us than the pills we ingest - and cheaper. Well, maybe not so cheap if you live in an area of the country, which sees months of gray blankets of clouds for months on end; especially this time of year. Ever since |
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| Complaining about MS doesn't mean you lack gratitude |
| Published: October 22, 2007, 1:28 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, Infusions, Ms Hug, Ms Balance, National Ms Society, Ms Community, Ms Research, Ms Your Feelings, Grief, Ms Blog |
| I'm pretty sure we had a blog like this once before (maybe a Thanksgiving blog) but I think this may be a prime time to do that type of blog again. Last week I put MS and all of it from which I tire on the page. Today, I'm going to take multiple sclerosis off the page and list just a couple of things which get me through a day. This morning |
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| You may have asked yourself, what is a stem cell? |
| Published: October 24, 2007, 2:50 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, Ms Balance, National Ms Society, Ms Community, Ms Research, Stem Cell Research, Ms Your Feelings, Ms Blog |
| does it matter to me and my MS? Well, tomorrow night is an excellent opportunity to answer that question and chime in on very important research. Tomorrow night, the HealthTalk MS webcast is called, “Stem Cells and MS,” we are going to have a panel discussion with two very prominent researchers in the field of stem cell research. |
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| Notes from the annual conference of the National MS Society |
| Published: October 29, 2007, 2:31 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, Ms Balance, National Ms Society, Ms Community, Accessibility, Ms Research, Ms And Your Feelings, Ms Blog, Nmss, Nmss Conference |
| anew, as I live my life with MS. And I do it with full knowledge that many minds brighter than mine, many pockets deeper than mine, many hearts bigger than mine are pulling for me, pulling for us. The next time you have an encounter with someone from the NMSS, make sure you thank them for everything they are doing for us. Life with MS would be so |
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| MS and Your Feelings: Book club blog chapter 9 |
| Published: October 31, 2007, 2:20 pm |
| Tags: Ms Treatment, Ms Therapy, Ms Balance, National Ms Society, Ms Community, Ms Research, Book Club Blog, Ms And Your Feelings, Allison Shadday, Ms Blog, Ms And Fatigue |
| as we look to our book club blog, we're talking about being sick and tired of being sick and tired. For those of you just joining the conversation (and I'm seeing a lot of new names out there and that is GREAT), we take the last blog of each month and review a chapter of Allison Shadday's recently published book MS and Your Feelings: Handling |
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| Optical coherence tomography: Replacement for MRI? |
| Published: November 2, 2007, 2:47 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, Ms Vision, National Ms Society, Ms Research, Ms Blog, Nmss, Nmss Conference, Oct, Optical Coherence Tomography, Mri |
| every person living with MS (almost) has some damage to the optic nerve, even though we may not realize it. Even if a patient has never complained of symptoms of optic neurosis, damage is being done to our ability to see; even at the cellular level. Using OCT to scan the back of the eyeball, doctors can see the thickness of the nerve |
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| It's too soon for candy canes: MS holiday stress |
| Published: November 5, 2007, 3:06 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Balance, Ms Community, Ms And Your Feelings, Ms Blog, Ms And Fatigue, Ms Stress, Holiday Stress, Holidays |
| humbug? No, I think it's the MS. That's why I'm starting to feel holiday stresses already. Caryn and I have decided to spend the Christmas holidays quietly at home with the dogs this year. I am, very much, looking forward to some quiet time with nostalgic music and fairy lights, eggnog and favorite movies. I should not be feeling these pangs |
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| It's November; how is your MS today? |
| Published: November 7, 2007, 3:03 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, Infusions, Ms Balance, Ms Community, Brain Lesions, Ms Research, Ms And Your Feelings, Ms Blog, Ms And Fatigue, Ms Stress, Novantrone |
| with the advice of my MS team, to use up that last dose or so of Novantrone and I'm planning on that. My MS is manageable today, but we all know that it's not much more than one overnight, and all that can and perhaps will change. I guess I'm thinking of my MS today like we used to think about the coming months when I was a boy in |
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| I need to ask a taboo question about MS |
| Published: November 9, 2007, 3:37 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, Ms Vision, Ms Balance, Ms Community, Ms Research, Ms And Your Feelings, Ms Blog, Ms And Fatigue |
| before responding to today's blog. I hope I'm stirring up an intellectual discussion that you may not permit yourself under normal situations. Like our blog a couple of weeks ago about being tired of MS, I think it's healthy to have a place where we don't have to be the strong ones for a moment. Remember how refreshing it was to let out a |
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| Death of a clown |
| Published: November 12, 2007, 5:01 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, Ms Hug, Ms Community, Ms Research, Ms And Your Feelings, Grief, Ms Blog, Ms Stress |
| of something bigger than themselves. Many of you know the feeling manifested in the sense of community you find here at the Life with MS blog. Why aren't we giving more people the chance to feel that way about our movement? Yes, you may not have the funds to write a big check for research. Yes, your energy levels wax and wane so unpredictably |
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| November recipe for success: Ode to the humble Yam |
| Published: November 14, 2007, 2:29 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Healthy Recipe, Ms Community, Ms And Your Feelings, Ms Blog, Ms And Fatigue, Ms Stress, Holiday Stress, Holidays |
| take this second Wednesday's blog and talk about a food that is good for us, easy to prepare and might help control some of our MS (or non-MS) weight issues. Far too many of my generation don't know a yam (or sweet potato for that matter) without gobs (and globs) of brown sugar and don't forget those marshmallows! If the holiday table is the only |
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| What would you want your MS healthcare team to know? |
| Published: November 19, 2007, 12:04 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, Ms Balance, Ms Community, Ms Research, Ms And Your Feelings, Ms Blog, Ms And Fatigue, Ms Stress, Ms Clinics |
| we are on this Life with MS blog community, it's opinionated. If I take a look at the comment section of nearly every one of our postings I see your thoughts and feelings pouring onto the pages. Take the Tysabri blog from over a year ago; there are over 800 comments posted there. Have a look to the post about being tired of multiple |
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| Sometimes it's hard to be thankful |
| Published: November 21, 2007, 2:19 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, Ms Community, Ms And Your Feelings, Ms Blog, Ms Stress, Holiday Stress, Holidays |
| It's just hard sometimes, MS and all, to look back and look forward and not think of how life could be; how the whole world (and my world) could be so much better. Maybe that's healthy optimism. Maybe it's altruism. Maybe it's just the longing of a simple-minded guy in Seattle I've read, time and again, how some of us in the Life with MS |
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