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| The many hands that help |
| Published: September 24, 2007, 3:07 pm |
| Tags: Ms Treatment, Ms Therapy, Ms Balance, Healthy Recipe, Ms Community, Accessibility |
| juice and a stick mess of themselves for a few hours and even cleaned up. It looked to me as if the mill hadn't been used in a couple of decades, but we got it up and running and had a ball! Obviously, I don't need 40 gallons of cider (now gently bubbling away in my cellar, with the help of some champagne yeast). Likely, most of us don't have |
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| October check: How is your MS today? |
| Published: October 3, 2007, 2:19 pm |
| Tags: Tysabri, Multiple Sclerosis, Ms Treatment, Ms Therapy, Humira, Infusions, Ms Hug, Ms Vision, Ms Balance, National Ms Society, Ms Community, Accessibility |
| flattery. So, how is your MS today? Mine? Well, at a recent neuro appointment, we're starting to see a slow slide again. It has been two years since my last Novantrone treatment. I, along with my docs, decided to keep one dose in my hip pocket' as it were. And it may be time to use it. The good news is that these past two years have |
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| The low down on MS misinformation |
| Published: October 15, 2007, 6:09 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, Ms Balance, Healthy Recipe, Ms Community, Ms Research, Ms Blog |
| I write our MS because many of these shameless marketers/spammers seem to think I'm some kind of a gatekeeper to the MS community. But you don't have to have a forum like this blog to find yourself in the path of the latest MS pitch. My favorite (lips dripping with sarcasms right now) are ads you'll see on respectable sites. A |
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| I'm tired of MS and I'm just plain tired |
| Published: October 17, 2007, 4:01 pm |
| Tags: Tysabri, Multiple Sclerosis, Ms Treatment, Ms Therapy, Humira, Infusions, Ms Hug, Ms Vision, Ms Balance, National Ms Society, Ms Community, Accessibility, Brain Lesions, Ms Research, Stem Cell Research, Ms Your Feelings, Grief, Ms Blog |
| and diametric opposition of MS. I'm tired of my friends slipping and sliding down a slope and it being called progression . I'm tired I'm tired of my brain working so hard to find new pathways to get information to my body that I lay awake half the night. I'm tired of taking drugs to help me sleep that do not work and leave me too groggy |
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| Good day sunshine and hello vitamin D! |
| Published: October 19, 2007, 12:55 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, Ms Hug, Ms Balance, National Ms Society, Ms Community, Ms Research, Ms Your Feelings, Ms Blog |
| I've been hearing from MS specialists that the vitamin D that we produce in our bodies, synthesized from the sun, is better for us than the pills we ingest - and cheaper. Well, maybe not so cheap if you live in an area of the country, which sees months of gray blankets of clouds for months on end; especially this time of year. Ever since |
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| Complaining about MS doesn't mean you lack gratitude |
| Published: October 22, 2007, 1:28 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, Infusions, Ms Hug, Ms Balance, National Ms Society, Ms Community, Ms Research, Ms Your Feelings, Grief, Ms Blog |
| blog again. Last week I put MS and all of it from which I tire on the page. Today, I'm going to take multiple sclerosis off the page and list just a couple of things which get me through a day. This morning I'm grateful for: The smell of fresh coffee in the morning and NPR Good morning licks from Sadie & Stella and kisses from |
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| You may have asked yourself, what is a stem cell? |
| Published: October 24, 2007, 2:50 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, Ms Balance, National Ms Society, Ms Community, Ms Research, Stem Cell Research, Ms Your Feelings, Ms Blog |
| does it matter to me and my MS? Well, tomorrow night is an excellent opportunity to answer that question and chime in on very important research. Tomorrow night, the HealthTalk MS webcast is called, “Stem Cells and MS,” we are going to have a panel discussion with two very prominent researchers in the field of stem cell research. |
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| Notes from the annual conference of the National MS Society |
| Published: October 29, 2007, 2:31 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, Ms Balance, National Ms Society, Ms Community, Accessibility, Ms Research, Ms And Your Feelings, Ms Blog, Nmss, Nmss Conference |
| anew, as I live my life with MS. And I do it with full knowledge that many minds brighter than mine, many pockets deeper than mine, many hearts bigger than mine are pulling for me, pulling for us. The next time you have an encounter with someone from the NMSS, make sure you thank them for everything they are doing for us. Life with MS would be so |
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| MS and Your Feelings: Book club blog chapter 9 |
| Published: October 31, 2007, 2:20 pm |
| Tags: Ms Treatment, Ms Therapy, Ms Balance, National Ms Society, Ms Community, Ms Research, Book Club Blog, Ms And Your Feelings, Allison Shadday, Ms Blog, Ms And Fatigue |
| recently published book MS and Your Feelings: Handling the Ups and Downs of Multiple Sclerosis. This month, we're on to chapter 9. I devoured this book when the first of several copies made their way to me. I'll admit that I've been re-scanning the past couple of chapters as I write my monthly blog entry. This chapter, however, I |
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| It's too soon for candy canes: MS holiday stress |
| Published: November 5, 2007, 3:06 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Balance, Ms Community, Ms And Your Feelings, Ms Blog, Ms And Fatigue, Ms Stress, Holiday Stress, Holidays |
| humbug? No, I think it's the MS. That's why I'm starting to feel holiday stresses already. Caryn and I have decided to spend the Christmas holidays quietly at home with the dogs this year. I am, very much, looking forward to some quiet time with nostalgic music and fairy lights, eggnog and favorite movies. I should not be feeling these pangs |
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| It's November; how is your MS today? |
| Published: November 7, 2007, 3:03 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, Infusions, Ms Balance, Ms Community, Brain Lesions, Ms Research, Ms And Your Feelings, Ms Blog, Ms And Fatigue, Ms Stress, Novantrone |
| with the advice of my MS team, to use up that last dose or so of Novantrone and I'm planning on that. My MS is manageable today, but we all know that it's not much more than one overnight, and all that can and perhaps will change. I guess I'm thinking of my MS today like we used to think about the coming months when I was a boy in |
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| I need to ask a taboo question about MS |
| Published: November 9, 2007, 3:37 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, Ms Vision, Ms Balance, Ms Community, Ms Research, Ms And Your Feelings, Ms Blog, Ms And Fatigue |
| we last talked of a cure for MS. When we spoke of cures then it was to understand that cure means different things to different people. Today, I want to know if you think (not feel, not hope, not believe) there will be a cure for MS in the next 50 years? Now, I know that some of you will think that I'm just stirring an emotional pot for |
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| What would you want your MS healthcare team to know? |
| Published: November 19, 2007, 12:04 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, Ms Balance, Ms Community, Ms Research, Ms And Your Feelings, Ms Blog, Ms And Fatigue, Ms Stress, Ms Clinics |
| perception of living with MS. Today, we have an opportunity to make our thoughts known to our healthcare teams. A small group of us living with this disease have been asked to present to an all-staff meeting at one of my local MS Clinics. This center is renowned, not only in the Pacific Northwest of the US, but all over the country and the |
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| MS year in review |
| Published: November 26, 2007, 12:24 pm |
| Tags: Multiple Sclerosis, Ms Treatment, Ms Therapy, Ms Balance, Ms Community, Ms Research, Ms And Your Feelings, Ms Blog, Ms Webcast |
| HealthTalk webcast, “MS in 2007,” my guests and I will not only review what has happened in the past 12 months but we'll take a look forward to the next year as well. It seems I'm just back from my long holiday weekend and I'm up well before the Sun to get a jump on a busy week. I'd write more about this exciting show, but I have a |
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| Contrast vision and MS |
| Published: November 28, 2007, 3:03 pm |
| Tags: Tysabri, Ms Treatment, Ms Therapy, Ms Vision, Ms Balance, Ms Community, Ms And Your Feelings, Ms Blog, Ms And Fatigue, Oct, Optical Coherence Tomography, Ms Stress, Holiday Stress, Holidays |
| neuritis, most of us with MS have some amount of vision deficit due to multiple sclerosis. The damage shows itself, mostly, in our ability to see the gray scale; this is the subtle differences in black and white tones as they blend together. As I was driving over a mountain pass, far too early to rationally be called morning, it was drizzling |
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